Support Groups

Muscular Dystrophy South Australia facilitates regular support groups that provide the opportunity for people with a neuromuscular condition and/or their friends and family to develop relationships with people who share similar experiences. Support groups provide valuable emotional support and practical assistance. These groups focus on sharing ideas, experiences and tips on how to manage some of life’s hurdles for individuals who are living with a neuromuscular condition.

Our Client Services team is happy to organise groups to meet and can facilitate meetings if required. This could mean arranging guest speakers to come in and talk to the group or supporting the group to identify a topic to discuss each month. In the absence of sufficient numbers to attend a Support Group, Client Services can facilitate client to client contact.

Currently most support groups are held at the Muscular Dystrophy South Australia building. However, we rely on feedback from our clients to determine where and when a support group may be held and what it might involve.

Current Support Groups

The MD Ninjas

The MD Ninja group is for clients aged 7-14 years old who have been diagnosed with a neuromuscular condition. The group meets monthly on a Saturday morning either at the Muscular Dystrophy SA office or at an offsite location. We undertake different activities like getting messy with arts and crafts or simply going to watch a good movie at the cinema. Below is a photo of a few MD Ninja members at one of the most recent groups.

editedTo find out more about the group, view our Flyer and contact Client Services on 8234 5266 or email hteimorzadeh@mdasa.org.au

The MD Mafia

The MD Mafia group is for males aged 15-25. This takes place generally on a Saturday once a month. However, we have held MD Mafia groups on either a Sunday or Friday night when attending special events or going out for a meal. Similarly to the MD Ninja group, the MD Mafia meet to undertake social activities and to enjoy each others company. Below is a photo of some of the members of the MD Mafia when the group was recently held at the Muscular Dystrophy SA office. IMG_0082To find out more about the MD Mafia or to get involved, contact Client Services on 8234 5266 or email hteimorzadeh@mdasa.org.au

 

Condition Specific Support Groups

Muscular Dystrophy SA also facilitates a range of condition specific support groups throughout each year. Some of these groups meet quite frequently, whilst others prefer to meet just annually. Below is a list of current condition specific support groups that are being facilitated by Muscular Dystrophy SA.

Spinocerebellar Ataxia Group

The Spinocerebellar Ataxia (SCA) group is held at the Muscular Dystrophy SA office and meets on the second Wednesday of each month. The group is for individuals who have been diagnosed with SCA and their families/carers. The group meets to share information, listen to provided guest speakers and socialise with one another.

Charcot Marie Tooth Group

The Charcot Marie Tooth (CMT) group meets 3 monthly at the Muscular Dystrophy SA office. Similarly to the SCA group, the CMT group meets with an aim of sharing information, listening to invited guest speakers and socialising with people who are facing similar hurdles.

Myotonic Dystrophy Group

The Myotonic Dystrophy group meets quaterly with a similar vision in mind to both the SCA & CMT groups. Guest speakers are organised by Muscular Dystrophy SA staff and the group are given the opportunity to share/learn new information and chat amongst themselves.

Myositis SA Support Group

The Myositis Support Group is not facilitated by Muscular Dystrophy SA. The Myositis SA Association organises these support groups. However, the groups are held at the Muscular Dystrophy SA office.

 

Art Therapy

Muscular Dystrophy SA also facilitates Art Therapy sessions, both for adults and children. Please contact the Client Services team to find out when the next Art Therapy session will be held.

 

Getting involved

Muscular Dystrophy SA can provide some assistance with travel costs to and from support groups. Other support groups can be facilitated in response to client demand with numbers permitting. If you are interested in participating in or commencing a support group, please contact Hoda or Kelly in Client Services on 8234 5266 or email KMclean@mdasa.org.au or HTeimorzadeh@mdasa.org.au. We are also always looking for volunteers for some of our groups so if you or anyone you know would like to do some volunteering then do not hesitate to contact us.

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