Support groups provide valuable emotional support and practical help. Going to a support group does not mean sitting in a room full of tears or sad stories. Of course the sharing of stories and emotions is important but support groups are also about sharing ideas, experience and tips on how to make life easier when living with a neuromuscular disorder.
Muscular Dystrophy South Australia facilitates support groups that provide the opportunity for people with a neuromuscular condition or their friends and family to develop relationships with people who share similar experiences.
Our Client Services team is happy to organise groups to meet and can facilitate meetings if required. This could mean arranging guest speakers to come in and talk to the group or supporting the group to identify a topic to discuss each month. Client Services can also facilitate client to client contact. We regularly have clients who wish to connect with others with the same condition. Speak to Client Services about the different ways we could make this happen for you.
Currently most support groups are held at the Muscular Dystrophy South Australia building. However, we rely on feedback from our clients to decipher where a support group may be held and what it might involve. We currently hold a support group called MD Mafia for males aged 15-25. This takes place either on a Saturday or Sunday once a month and involves participants undertaking a range of different activities, from attending comedy shows to playing video games and watching movies in our office. Muscular Dystrophy SA also holds a Spinocerebellar Ataxia support group that takes place every second Wednesday. The SCA group is held at the Muscular Dystrophy SA office and the Client Services staff aim to organise guest speakers for each session on a wide range of different topics. Other support groups are held as a result of client demand. Muscular Dystrophy SA can provide some assistance with travel costs to and from support groups.
Contact Services on 8234 5266 or email Aisling for MD Mafia – email@example.com, Hoda for the SCA group – firstname.lastname@example.org or speak to anyone in client services regarding other support groups being held.