Muscular Dystrophy South Australia facilitates support groups that provide the opportunity for people with a neuromuscular condition or their friends and family to develop relationships with people who share similar experiences. Support groups provide valuable emotional support and practical help. Support groups focus on sharing ideas, experience and tips on how to make life easier for individuals who are living with a neuromuscular condition.
Our Client Services team is happy to organise groups to meet and can facilitate meetings if required. This could mean arranging guest speakers to come in and talk to the group or supporting the group to identify a topic to discuss each month. In the absence of sufficient numbers to attend a Support Group, Client Services can facilitate client to client contact.
Currently most support groups are held at the Muscular Dystrophy South Australia building. However, we rely on feedback from our clients to determine where a support group may be held and what it might involve.
Current groups being held:
- MD Mafia for young males aged 15-25. This takes place either on a Saturday or Sunday once a month.
- SCA support group for individuals who have been diagnosed with Spinocerebellar Ataxia. This takes place on the second Wednesday of every month at the Muscular Dystrophy SA office.
- Myositis support group held every three months.
- Other support groups include CMT and Leukodystrophy groups held at pre-arranged times throughout the year
A parent/carer support group will take place at the Muscular Dystrophy South Australia office either on the 30th of August or the 2nd of September. Contact client services for more details. Similarly, a Camp Catch Up will be held for campers, siblings and volunteers who attended camp in either 2013 or 2014, for more information go to the Recreational Activities page.
Muscular Dystrophy SA can provide some assistance with travel costs to and from support groups. Other support groups can be facilitated in response to client demand with numbers permitting. If you are interested in participating in or commencing a support group, please contact Aisling or Hoda in Client Services on 8234 5266 or email firstname.lastname@example.org or email@example.com