Muscular Dystrophy South Australia facilitates regular support groups that provide the opportunity for people with a neuromuscular condition and/or their friends and family to develop relationships with people who share similar experiences. Support groups provide valuable emotional support and practical assistance. These groups focus on sharing ideas, experiences and tips on how to manage some of life’s hurdles for individuals who are living with a neuromuscular condition.
Our Client Services team is happy to organise groups to meet and can facilitate meetings if required. This could mean arranging guest speakers to come in and talk to the group or supporting the group to identify a topic to discuss each month. In the absence of sufficient numbers to attend a Support Group, Client Services can facilitate client to client contact.
Currently most support groups are held at the Muscular Dystrophy South Australia building. However, we rely on feedback from our clients to determine where and when a support group may be held and what it might involve.
The MD Ninjas
The MD Ninja group is for clients aged 7-14 years old who have been diagnosed with a neuromuscular condition. The group meets monthly on a Saturday morning either at the Muscular Dystrophy SA office or at an offsite location. We undertake different activities like getting messy with arts and crafts or simply going to watch a good movie at the cinema. Below is a photo of a few MD Ninja members at one of the most recent groups.
The MD Mafia
The MD Mafia group is for males aged 15-25. This takes place generally on a Saturday once a month. However, we have held MD Mafia groups on either a Sunday or Friday night when attending special events or going out for a meal. Similarly to the MD Ninja group, the MD Mafia meet to undertake social activities and to enjoy each others company. Below is a photo of some of the members of the MD Mafia when the group was recently held at the Muscular Dystrophy SA office. To find out more about the MD Mafia or to get involved, contact Client Services on 8234 5266 or email Aisling on firstname.lastname@example.org
Muscular Dystrophy SA also facilitates Art Therapy sessions, both for adults and children. Please contact the Client Services team to find out when the next Art Therapy session will be held.
Call 82345266 or Email Hoda on email@example.com
Spinocerebellar Ataxia Group
The Spinocerebellar Ataxia (SCA) group is held at the Muscular Dystrophy SA office and meets on the second Wednesday of each month. The group is for individuals who have been diagnosed with SCA and their families/carers. The group meets to share information, listen to provided guest speakers and socialise with one another.
Charcot Marie Tooth Group
The Charcot Marie Tooth (CMT) group meets 3 monthly at the Muscular Dystrophy SA office. Similarly to the SCA group, the CMT group meets with an aim of sharing information, listening to invited guest speakers and socialising with people who are facing similar hurdles.
Myotonic Dystrophy Group
The Myotonic Dystrophy group meets quaterly with a similar vision in mind to both the SCA & CMT groups. Guest speakers are organised by Muscular Dystrophy SA staff and the group are given the opportunity to share/learn new information and chat amongst themselves.
Myositis SA Support Group
The Myositis Support Group is not facilitated by Muscular Dystrophy SA. The Myositis SA Association organises these support groups. However, the groups are held at the Muscular Dystrophy SA office.
Siblings Australia is committed to improving the support available for siblings of children and adults with chronic conditions including disability, chronic illness and mental health issues.
Click on the link to watch their new Sibworks peer support programme